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You may have questions about the functions
of the Registry. Here are the answers to a few of the most common questions
we are asked. Click through our helpful
links page for more in-depth information about Pap smears and cervical
cancer in general. And remember, always see your doctor for specific,
personal advice.
What is the Pap Test Registry?
The Registry is a government funded organisation which
compiles a confidential list of Victorian women's Pap test results. The
Registry's formal name is the Victorian Cervical Cytology Registry.
Why
do we have the Registry?
The Registry was established because of convincing evidence that an organised
program is the most effective way to reduce cervical cancer. Through its
encouragement of women to have regular Pap tests, the Registry can ensure
better cervical screening for women. Through its data collection and monitoring
and evaluation of the screening program, the Registry helps to improve our
understanding of cancer of the cervix and its treatment.
How
will the Registry help me?
There are three main benefits:
1. Reminders when tests are overdue
In general, Pap tests are recommended every two years. The Registry will
send you a reminder letter when this two year period has elapsed. You
may receive an earlier reminder if you have had an abnormal test result
in the past. Having regular tests is very important to prevent cancer
of the cervix.
2. A safety net for important abnormalities
Thankfully most Pap tests are normal but inevitably some abnormalities
are found. The Registry provides a safety net so that important abnormalities
are not overlooked. Occasionally women are not told of abnormal Pap test
reports. The Registry is able to notify the doctor when an important abnormality
appears to have been overlooked.
3. More accurate Pap test results
Pap tests are reported by scientists. The accuracy is very good but cannot
be 100%. Pap test reports are likely to be more accurate if they are reported
in the light of previous test results. The Registry helps the scientist
report your smear accurately by providing a summary of your previous test
results.
How
do I join the Registry?
It's easy - when you have a Pap test, your details are automatically
forwarded to the Registry by the laboratory that reports on your test.
Do
my results have to go to the Registry?
The choice is yours. If you do not want your results registered, tell
your doctor. However, unless your results are registered, you will not
receive reminder letters or follow-up advice from the Registry. Plus, the
more results we have registered, the better our understanding will be,
and the closer we will come to preventing cervical cancer. You can withdraw
your details from the Registry at any time by making a written request to
the Registry.
What
information is recorded?
Your name, date of birth, address, Medicare Number, results of your Pap
test and your doctor's name and address. Results of further investigations
such as colposcopy, biopsy and HPV tests may be recorded as these can influence the
frequency at which Pap tests are necessary.
How can I find out
if I am already registered?
You can have access to your own information by contacting the Registry.
Who
else has access to my information?
The Cancer Act which defines the functions of the Registry allows
you, your doctor and the laboratory which reported your Pap test to have
access to your details. The Act also requires the Registry to forward
details of any cases of cervical cancer it is aware of to the Victorian
Cancer Registry.
Who should have Pap
tests?
Adult women should continue to have Pap tests every two years until
the age of 70 years. Even if you no longer have periods or have not had
sex for years, you should continue with regular tests. Most women who
have had a hysterectomy (removal of their uterus and cervix) do not need
further Pap tests. If you are unsure, check this with your doctor.
Where can I go for
a Pap test?
The Registry does not make appointments or offer a service for
taking Pap tests. To make an appointment contact your own doctor or Community
Health Centre.
How can I update
my details?
The Registry can only send you a reminder if it knows your current
details. So if you change your name or address, let the Registry know
- either phone us or click here to email
your new details.
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